Time for a shake up in musculoskeletal pain care
Most of us working in the pain field know its many challenges well. Challenges are widespread, reaching from the health systems (macro) level, downstream through service delivery level and into the clinical (micro) coalface.
How can we approach this complexity to achieve person-centred care and respond to the escalating burden associated with musculoskeletal pain in an efficient, effective and sustainable way? It’s time to shake it up and look how we can address these challenges through system-wide reform.
Why now and why in pain care?
The burden of disease associated with non-communicable disease (NCD), and musculoskeletal pain in particular, is rising… and fast. We need to act now. As a community, musculoskeletal clinicians and researchers, service providers and policy makers collectively are in the ideal position to lead system change: many working with musculoskeletal pain understand the context of complexity, multi-morbidity and the need for teamwork.
What are Models of Care?
Models of Care (MoCs) are a system-level enabler to drive evidence for ‘what works’ across the whole of health: from policy/systems, across service delivery and into practice. MoCs provide a springboard to support a reform agenda in health systems.
MoCs do this by describing not only what care to deliver but also ‘how to’ deliver care. They move beyond clinical guidelines (the ‘what’) to a focus on implementation (the ‘how).
We’ve previously reviewed the contemporary evidence for musculoskeletal MoCs and outlined how to support implementation of coordinated care, across different economic settings to achieve the right care at the right time in the right place, delivered by the right team, and using the right resources.
In this blog, we give a snapshot of enablers to implementation of MoCs with a specific focus on use of digital strategies. We outline how these initiatives are being used to support musculoskeletal pain reform through informing policy and health strategy priorities, resourcing and health governance decisions (macro factors), service design and workforce capacity building initiatives (meso factors) and consumers’ participation in care and clinicians’ practice behaviours (micro factors).
Macro-level initiatives to support implementation of MoCs
Standardised pain outcomes data captured through centralised registries means we can monitor and evaluate health and economic outcomes for musculoskeletal pain. These data then are used to inform strategic policy, governance and planning of service delivery priorities. Standardised, efficient data entry, and the collation and monitoring of system, clinical and patient-reported outcomes are critical if we are to address the escalating burden associated with musculoskeletal pain conditions.
Here are two examples:
The electronic Persistent Pain Outcomes initiative (ePPOC) is an implementation initiative of the Australian and New Zealand College of Anaesthetists, Faculty of Pain Medicine. ePPOC enables a systemised electronic collection of a standardised set of data items and assessment tools by specialist pain services throughout Australia and New Zealand, including capture of person-centred, clinical and system outcomes. The outcomes of this initiative include system, service and health data[5], allowing for benchmarking of facilities against best practice.
The Collaborative Health Outcomes Information Registry (CHOIR) initiative in the USA. CHOIR uses open source, free data-collection software created in partnership with cross-discipline scientists, clinical experts and the National Institutes of Health.
CHOIR allows capture of quantitative and qualitative information about people with pain (currently >10,000 cases) in a safe, secure, and user-friendly system. Sophisticated reporting of individual person-centred data is mapped against population-derived normative data, in addition to systems-level data about clinical pathways and cost effectiveness.
The ePPOC and CHOIR initiatives allow for cross-jurisdictional comparison of system, clinical and person-centred pain outcomes. This means we have important data that can be used for practice benchmarking and comparative cost effectiveness, as well as the supporting data-driven policymaking and service decision making.
Meso-level initiatives to support implementation of MoCs
A key factor constraining the delivery of effective pain care, is deficiencies in knowledge, skills and competencies of our health workforces. The delivery of care fails to consistently align with evidence for what works. Yet, the burden of pain associated with musculoskeletal conditions can be reduced when evidence-based management is implemented.
When applied, such care is translated into measurable downstream health and economic benefits. Here we provide a few examples of building system and workforce capacity to support implementation of contemporary musculoskeletal pain MoCs.
The 2018 Global Year of Pain Education has implemented targeted initiatives to support health professional competency capacity building led by the International Association for the Study of Pain (IASP).
These include updated pain curricula (freely accessible on the IASP website) with a focus on embedding knowledge and core competencies that are aligned across disciplines. Additional initiatives supporting workforce capacity building address the challenges of pain management in resource-limited countries, such as pain training camps in Myanmar for the pain community in Southeast Asia.
EHealth systems can also lever workforce capacity building to support implementation of MoCs. Contemporary initiatives that build workforce capacity and upscaling using eHealth technologies include:
The TelePain Initiative running across states in the USA and using video, web, and telephone conferencing technologies to support the delivery of cross-sector pain services.
The Extension for Community Health Outcomes (ECHO: specifically, the Ontario Chronic Pain and Opioid Stewardship at UHN) is a telehealth program implemented to support knowledge transfer from ‘one to many’ primary care providers. This helps to build self-efficacy and capacity for improved pain care in Ontario, Canada.
Telephone- and Internet-delivered model of service delivery for people with osteoarthritis pain delivered through the Australian Centre for Health Exercise and Sports Medicine, shows clinically meaningful improvements in pain and function that are sustained for at least 6 months.
The Body in Mind website. This collaborative initiative promotes knowledge translation, and improves healthcare professionals understanding of clinical pain sciences. This e-resource has provided in excess of 900 blog posts, (from over 350 authors in 25 countries) with a focus on translating evidence-based pain research into more clinically-usable forms.
Micro-level initiatives to support implementation of MoCs
Evidence-based treatment programs delivered via the Internet can support effective management of arthritis, osteoporosis, and persistent musculoskeletal pain in children, adolescents and adults.
Examples include:
iPeer2Peer which is an innovative, tailored peer-mentorship program for young people enabled through Skype video call and run over 8 weeks. This provides behaviour change support through modelling and reinforcement by trained peers.
The Pain Tool Kit is a consumer-led evidenced-based online resource offering free 24/7 access to practical knowledge and skills to support co-care, bypassing some of the access, travel and cost barriers of face-to-face consultations.
The Pain Course, an internet-delivered intervention offered by the eCentreClinic as is suitable for Australian people with persistent pain conditions. Consumers find this program very acceptable and it’s time efficient with accumulating evidence for significant clinical reductions in pain, disability, anxiety and depression levels, and increased patient self-efficacy.
painHEALTH and the Pain Management Networkwebsite are freely accessible web-based resources providing guidance and support to both consumers and their treating health professionals. These evidence-based e-resources are aligned with musculoskeletal MoCs and were co-designed in partnership with consumers, healthcare providers and policy makers.
MoCs have a key role to play as a system-level vehicle to bring us together in a concerted effort to drive reform and help translate evidence for ‘what works’ in musculoskeletal pain management, into policy and clinical practice. Multi-level improvement is not only needed in pain care, but across most NCDs. Our health systems are inadequately prepared to deliver care for NCDs. It’s time for reform to drive better pain care for all.
This article was published by Body in Mind.
Helen Slater is a Professor at the School of Physiotherapy and Exercise Science at Curtin University and her clinical work focuses on people with complex pain conditions. Her research interests includes methods to improve evidence based pain management into real world clinical settings.